Posts from the ‘Asperger’s Syndrome’ Category

Randomness

So, I’m treadmilling it tonight and on the tevee (how cool is it treadmills have their own, individual teeeevees?  God is good)  and I swear, I was so happy to see The Office, I the_office_cage_match_inner.jpgcould’ve just cried right there.  Nevermind they were episodes I had already seen, but, dadgum, I’ve missed them. 

What does it say about me that I can’t wait for next Thursday and a new episode?  What has become of me?

I saw somebody today wearing a blue sock and a black sock.  Nope.  It was not me. 

I’m ashamed to say it, but, I have arrived a little late to the Gillian Welch/David Rawlings party and alls I have to say is…I am in love.  Why didn’t any of you direct me to this sooner?  I mean, yeah…I was aware and had a bit of a ‘tude about them California people trying to do that stuff.  (Never mind California is the state of my birth)  I’m such a snob about Hillbilly Music.  But, here, in front of God and everybody…I repent.  I am so sorry. 

Who is a happy girl since finding out that The Philadelphia Story is going to be playing at the Belcourt April 19-20?  Can you guess?  That would be me. 

Something else I’m looking forward to and excited about is the 1st Annual 5k Run/Walk Beyond The Limits For Autism, which is also April 19 in Hendersonville.   I am there.

And who told me I needed a hobby?

It’s A Gift

Here’s a great article from CNN.com written by somebody with Asperger’s.  The things the writer describes are very similiar to #2.  He has a sense of humor though.  He does take things you say literally, which is challenging for a sarcastress like me. 

The more I learn about Asperger’s and the more stuff like this I read, the more I realize that really, my #2 has a gift.   

trevor-mandolin.jpg

One of these days, he’s going to take these instruments he pretends to play and he’s going to break into Rawhide or something.

This Is Familiar To Me…

When I got to work this morning, several people were talking about the little boy they saw on the news this morning with Asperger’s that sang the National Anthem at a Martin Luther King rally last week and how singing kinda zaps him into place. 

When #2 is doing homework, drawing, or anything that he’s focused on, he hums.  Sometimes, it’s at different pitches and different decibel levels.  All of this is interesting.  Perhaps music could be a very important key for some people with this? 

Go listen to David Militello sing.  It’s amazing.  I can’t help but laugh when he’s on the pew and he’s standing on his head.  That is what life with #2 is like sometimes. Welcome to my world.

Things You Probably Don’t Want To Know About My Saturday

 If your dvr starts acting like it’s possessed by Satan, you can unplug it, plug it back in and it will work.

I forgot the Game Show Network shows “What’s My Line” and “I’ve Got A Secret” at like, 3 in the morning.    Bob Crane was on the WML I saw when I couldn’t sleep (again) with a young and quite pert and cute Phyllis Newman.  I love her.

Poor Bob Crane.  That’s one sad story there, friends.  This episode was from 1965  during the height of his success with Hogan’s Heroes.  He was one  good looking, charming sonuvagun.

Bob is the  perfect example of how life can spin scarily out of control and before you can say “Colonel Klink”, you can find yourself in a heap o’trouble.  (This is where I insert the “Mmm, mmm, mmm” just like my father used to do when telling a sad, unfortunate story).

Feelings are Time Travelers.  Did you know that?   I learnt that on the Oprah Show yesterday. Some very wise rabbi (not Schmooley) said so.  I think the Good Rabbi is dead on right there.  What would we do without Oprah?

I learned that just because I set my alarm for 6:30 on Saturday morning to get to #2’s basketball game, that does not mean I will hear said alarm the first time it goes off.  In fact, I just might not hear it til say, an hour later when #2 is supposed to arrive for game.

I learned that it’s not a good idea to forget #2’s earplugs when he goes to play basketball.

Heh, I say “Play” but he mostly ran up and down the court today trying to make some kid on the other team laugh. #2 just has the best time wherever he’s at.  The loss today was not quite as horrid as last week’s.  We actually scored 10 points to First Methodist’s 20 or something.  Gavin loves that, I’m sure.

Chad gave #2 some cotton balls to stuff his ears to help muffle the noise.  Part of Asperger’s is the extreme sensitivity to sound.   Sounds that may be a little annoying to  most of us, are literally, painful to #2.  Scoreboards and whistles are kindly loud.

I couldn’t help but laugh everytime I looked at my kid, cotton balls in ears his funny little run he does when he’s really bored and uninterested in the game (most of the time)….he made me think of Warren and his earmuffs.  (Somebody out there’s gonna say I’m awful.  I have to laugh about it so I don’t cry.  Some of us deal with stuff through humor. )warren.jpg

8:00 basketball games aren’t really so bad.  If you look at it like you can go get it over with and come back home and take a nap, like Yours Truly did.  It’s really o.k. It’s just getting there that’s the interesting part.

Cinnamon does not have any place in Hazelnut creamer, Tiger Mart People.  Sorry.  Since when did y’all quit having the regular, hazelnut?  I do like the creamer pumps you got going though.

Did you know that there was such a thing as Corn Nuggets?  As in a cousin to the Chicken Nugget?  The Drama Queen would not eat spaghetti tonight but wanted Corn Nuggets instead.  That’s, like, gross.

I had one of the most humiliating experiences this evening, that I think I’ve ever had.  It’s in the Top Three of Sista’s Worst Moments.  Then again, it may be just the kick I need.

(Someday, I may tell y’all my most horrific moment in my life that still, to this day, almost 20 years later makes me cringe and shiver and want to put a bag over my head.  Today’s not that day though.  It’s actually funny now but very embarrassing.)

What I’ve Been Watching

The Smiff DVR has been fraught with good stuff of late.

I did finally get to see the great documentary on Bob Newhart on PBS that Newscoma told about. It is as good as she said it was.  Bob Newhart is one of my most favorite tv shows ever.

I recorded a wonderful documentary on Jerry Herman that I’ve probably watched 5 times.  He’s somebody I would so love to meet and pick his brain.

I watched not one, but, two movies with Geraldine Page last night.  I re-watched The Trip to Bountiful and for the first time saw Summer and Smoke. geraldine.jpg

Geraldine Page was probably the most incredible actress ever.  Or at the very least, in the top five. 

I rented a sequel to Grey Gardens called The Beales of Grey Gardens that had unseen archival footage.  I never tire of the Edie’s.  Never.

Today’s Man, which is a documentary about an adorable, wonderful guy named Nicky Gottlieb who has Asperger’s Syndrome. I see a number of similarities between he and #2.  I think, and hope, the outcome will be different for kids diagnosed with Asperger’s as young kids, as opposed to not getting a diagnosis until they’re grown.  I’m kinda inclined to think, totally as a layperson who is still learning about Asperger’s, that Nicky has something besides that. 

It’s late.  I should be asleep, but, I’m thinking about my kid.

I’m still learning so much about #2’s Asperger’s Syndrome.  It’s still a fairly new thing, being that he just got his official diagnosis before school got out.  I’m relieved in a way and then I have moments I find myself watching him when he’s in his own realm and I think “This is not fair.”  I guess that’s a normal thing.  He could have so much worse wrong with him. 

I do wonder if he’s going to be like Jerry on “Boston Legal.”  Will he learn social cues?  Will he be able to have one on one relationships with people?  I don’t want him to be a novelty.

  There is much to Trevor.  Sometimes, he blows my mind with the intensity in which he loves family members and others.  Like today, I came home from work at lunch.  He didn’t know I was coming and it was as though Spongebob Squarepants walked in the door.  Before I left to go back, he said “Mom, I’m SO glad you came home.”

He adores his daddy.  He wants nothing more than to be the seventh Grascal.  He thinks of those guys as his best buddies and he loves nothing more than being with that bunch of retards.  It’s deep with him.  I hope people in his life that will come along that he will care about will understand that about him.

Then, I read blogs like this and it reenforces the notion I have that my kid is special and destined for great things.  I picture #2’s greatness involving show business and Presidents of the United States.  He’s quite the expert on both of those things. 

Story Time

Now that I’m back working and really making good on my vow to be self disciplined and not get on the internet unless there’s a major 9/11 type disaster (3 days down.  Go Sista), I’ll have to probably do cluster blogging.  I’m amazed at how well I’m doing with that.  Like trying to get off food (which I’m not doing so good with of late) its something akin to withdrawing from crack.

I have a story.  I hope it will come across here half as funny as it was when it was told to me.  This was a story of Rex L. Camino proportions that sounded like something he would tell.  (Is Rex still alive?)

Anyway, I have this new co-worker, Dave.  Dave is hilarious.  Dave started at our office the same day I did.  He and I got taken around and introduced to everybody together.  That day, we had our polite, Hi-how-are yeeeew faces on.  I’m here to tell ya…Going on 4 weeks of sitting next to each other, those masks have come off.  He’s about 6’4, 250, looks like a professional football player…a big ol’ boy.  He’s not one of these people that’s funny in “Hey, look at me” kinda way.  He’s very low key with his humor and he can tell a story just about better than anybody I’ve run across.  I told him he oughta pick up where Jerry Clower left off.  He’s that funny.

I was telling Dave about #2 and his Asperger’s Syndrome.  Dave’s wife is either a physical therapist, no, she’s an Early Intervention specialist, so he knew what AS was.  I mentioned how #2 has a little tic or two and he sometimes makes little noises.

Dave’s in laws, including his wife, all have a funny little characteristic.  When they are excited  or about to tell something great, they’ll rub their hands together really fast and clench their teeth in a anxious kinda smile. You know what I’m talking about?  The whole clan does it.  He has a 22 month old daughter and here a week or so ago, SHE did the tic and he about fell out.  When his father in law tells a joke, he’ll do the hand rubbing, jaw clenching smile and do a little hop with it. 

Well, Dave’s wife has a first cousin, “Dougie” who is a severely autistic, young adult.  When he told me that, I nearly fell out of my chair laughing.  Not because the boy is autistic, but, because his name is “Dougie.”  Not Doug, Douglas….but “Dougie.” Could he have a more disability sounding name?  Almost like “Troy” or “Travis.” 

Dougie has made a lot of strides with his autism and knows everything there is to know about vacumn cleaners.  I’m learning a lot about autism of late and I tell ya….most people that have it, from one end of the spectrum to the other, are brilliant and have amazing talents like that.  Remember how Rainman could memorize the phone book? 

But, back to Dougie….he also has the family tic, according to Dave.   When he gets excited, instead of rubbing his hands together in front of his body, he lifts his hands OVER his head and rubs them together. 

I wish I had a video of Dave telling the story so you can see how funny it is. I had big ol’ tears rolling down my face when he told that the other day, I swear.   That’s part of what makes it so funny is Dave telling it.  I might have to video him telling it and blog it.  He went all over that office telling the story of Dougie, causing pants wetting laughter in his wake.

In all seriousness, I’m learning more and more about autism everyday now that the reality is there for #2.  It’s a relief to finally have some answers, but, there is also that thing of “I wish I’d have known this before” so he could have been getting the help he needs all along.  That sort of thinking does not do #2 any good, so luckily, I’m not beating myself over the head with that one. 

I remind myself that I am the one who first picked up on the possibility that #2 might have AS.  Even his degreed out the ying yang ADHD specialist at Vanderbilt didn’t suggest it first.  I brought it up to him.  I’ve done lots of reading this past year on the subject.  I put the pieces together that everything I was reading about Asperger’s described my kid to a t.   This is not to pat me on the back.  I’m just doing my job as #2′ mom.  I’d walk to California and back, barefoot on blacktop to see that this boy gets every opportunity in life.  I’ve always said that he was special because he was the unplanned, surprise kid. 

I met with the Special Ed teacher, the principal, the school psychologist and #2’s teacher today and the ball is rolling for his evaluation and official diagnosis to begin.  It’s really amazing how well he’s done without intervention for Asperger’s all this time.  I think a lot of that goes to the wonderful support he’s gotten from all the teachers he’s had so far (except his kindergarten teacher who totally didn’t get him) and I know without a fact, God has His big hand on my baby boy.  All this is working together to meld him into the wonderful human being he’s becoming.  He blesses everybody he comes in contact with, as I’m sure Dougie does in his life.